“The parents of children with autism were much more likely to report there was a big problem to get specialist care when they needed it. They were much more likely to report that they did not get needed mental health care for their children,” Kogan said.
Among other issues, Kogan also found that these families face unique challenges when trying to access health care services.
“The parents of some children with autism were much more likely to report there was a big problem to get specialist care when they needed it,” Kogan said. And the specialists are often where help is needed most. Prior studies have shown that about 83 percent of children with ASD have a co-occurrence of one or more non-autism spectrum disorder developmental diagnoses. Conditions like asthma, eczema, gastrointestinal disturbances, and seizures.
Rogan's study found that their number was closer to 90%, which could tie into why the level of frustration for parents of these children is so much.”
Source: Cape and Island.org